Bibliography
Tallbear, Kim. 2013. Native American DNA: Tribal Belonging and the False Promise of Genetic Science. Minneapolis & London: University of Minnesota Press.
Review by Michael Beach
Kim Tallbear is one of my favorite authors related to my studies in science, technology, and society (STS). The title of this work is self-explanatory, but the topics she covered are varied, and certainly explores ideas new to me.
One of overarching themes relates to how human test material such as blood samples have been used in the past in ways not agreed to by the subjects. Often banks of samples and data are sold to companies that develop treatments or further databases that yield not only medical findings, but revenues that come with them.
Tallbear also looks at the accuracy of DNA testing to find one’s ancestry. Such services have become popular in the private sector. There are many reasons to hold such findings suspect, and Tallbear reviews some of the technical issues. In terms of Native Americans, many of the issues are more social than technical. For example, there are specific government benefits for people who can document a native ancestry. Likewise, there is risk to those who claim native heritage when DNA tests don’t support their claim. Another difficulty the author has with native DNA testing is how many people claim specific tribal affiliation based on results. In reality, tribes intermingled so much through economic and warfare activity that it is difficult at best to narrow DNA categories in this way.
The problematic aspects Tallbear raises about DNA testing can be more generalized in two area as she does. The first happens when science and business are tied to each other. She points to the example of the genographic project (mapping the human gene structure) and ‘the business of research and representation’. Others have broached how science represents ‘facts’. Ian Hacking looks at the same issues from a philosophical perspective. He refers to the issues as ‘representing and intervening’. Likewise, Sheila Jasanoff created an entire framework that includes the idea of ‘controlling narratives’.
Tallbear finishes with a look at governance. Who can decide what’s appropriate use and language? Once collected, who owns human genetic tissue? She shares other complicating questions that are still unanswered. Even with modernized legal documents about what sort of rights research subjects cede when they sign a specific document, court cases continue. For example, if a company purchases data or samples from an academic study, then creates large revenues from that resource, are donors entitled to some of it? What part does race play in subject selection? How do scientists define a specific narrow population? How much isolation is required, or intermixing is acceptable, to make the samples be representative of a specific population? As the reader might imagine, such questions can continue. These are ethical concerns for scientists, and often cause ‘native’ people to be unwilling to trust them.
Tallbear, Kim. 2013. Native American DNA: Tribal Belonging and the False Promise of Genetic Science. Minneapolis & London: University of Minnesota Press.
Review by Michael Beach
Kim Tallbear is one of my favorite authors related to my studies in science, technology, and society (STS). The title of this work is self-explanatory, but the topics she covered are varied, and certainly explores ideas new to me.
One of overarching themes relates to how human test material such as blood samples have been used in the past in ways not agreed to by the subjects. Often banks of samples and data are sold to companies that develop treatments or further databases that yield not only medical findings, but revenues that come with them.
Tallbear also looks at the accuracy of DNA testing to find one’s ancestry. Such services have become popular in the private sector. There are many reasons to hold such findings suspect, and Tallbear reviews some of the technical issues. In terms of Native Americans, many of the issues are more social than technical. For example, there are specific government benefits for people who can document a native ancestry. Likewise, there is risk to those who claim native heritage when DNA tests don’t support their claim. Another difficulty the author has with native DNA testing is how many people claim specific tribal affiliation based on results. In reality, tribes intermingled so much through economic and warfare activity that it is difficult at best to narrow DNA categories in this way.
The problematic aspects Tallbear raises about DNA testing can be more generalized in two area as she does. The first happens when science and business are tied to each other. She points to the example of the genographic project (mapping the human gene structure) and ‘the business of research and representation’. Others have broached how science represents ‘facts’. Ian Hacking looks at the same issues from a philosophical perspective. He refers to the issues as ‘representing and intervening’. Likewise, Sheila Jasanoff created an entire framework that includes the idea of ‘controlling narratives’.
Tallbear finishes with a look at governance. Who can decide what’s appropriate use and language? Once collected, who owns human genetic tissue? She shares other complicating questions that are still unanswered. Even with modernized legal documents about what sort of rights research subjects cede when they sign a specific document, court cases continue. For example, if a company purchases data or samples from an academic study, then creates large revenues from that resource, are donors entitled to some of it? What part does race play in subject selection? How do scientists define a specific narrow population? How much isolation is required, or intermixing is acceptable, to make the samples be representative of a specific population? As the reader might imagine, such questions can continue. These are ethical concerns for scientists, and often cause ‘native’ people to be unwilling to trust them.
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